papers
2024
Race-ethnicity, rurality, and age in prospective preferences and concerns regarding closed-loop implanted neural devices.
Journal of Neuropsychiatry and Clinical Neurosciences. 2024 Aug 22:appineuropsych20230190. Online ahead of print.
10.1176/appi.neuropsych.20230190Preregistration
Open Data
Open Materials
The ethical landscape of prodromal Parkinson disease: Considerations for shared decision-making and health equity.
Neurology. 2024; 102(11):e209522.
PubMed Central PMC1070001710.1212/WNL.0000000000209522
Real world financial mismanagement in Alzheimer's disease, frontotemporal dementia, and primary progressive aphasia.
Journal of Alzheimer’s Disease. 2024; 99(1):251-262.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC11132181
10.3233/JAD-231021
Preregistration
Open Materials
Patient experiences of resection versus responsive neurostimulation for drug-resistant epilepsy.
Epilepsy & Behavior. 2024; 153:109707.
Open AccessPubMed Central PMC11185832
10.10.1016/j.yebeh.2024.109707
Ethical considerations in rapid and novel treatments in psychiatry.
Neuropsychopharmacology. 2024; 49(1):291-293.
Open AccessPubMed Central PMC10700644
10.1038/s41386-023-01635-y
2023
Recommendations for promoting user agency in the design of speech neuroprostheses.
Frontiers in Human Neuroscience. 2023;17:1298129.
Open AccessPubMed Central PMC10619159
10.3389/fnhum.2023.1298129
Care Ecosystem collaborative model and health care costs in Medicare beneficiaries with dementia: A secondary analysis of a randomized clinical trial.
JAMA Internal Medicine. 2023; 183(11):1222-1228.
PubMed Central PMC1050759510.1001/jamainternmed.2023.4764
Book Review: DeGrazia D, Millum J. A Theory of Bioethics. Cambridge University Press. 2021.
Kennedy Institute of Ethics Journal. 2023; 33(3):321-325.
10.1353/ken.2023.a917931Using neuroscientific and clinical context to assess and manage changes in core personal traits caused by deep brain stimulation.
AJOB Neuroscience. 2023; 14(3):310-312.
PubMed Central PMC1070001710.1080/21507740.2023.2243873
Moral reasoning through the eyes of persons with behavioral variant frontotemporal dementia.
Frontiers in Neurology. 2023; 14:1197213.
Open AccessPubMed Central PMC10365271
10.3389/fneur.2023.1197213
Contrasting two models of utilitarian reasoning.
Heliyon. 2023; 9(7):e17498.
Open AccessPubMed Central PMC10328838
10.1016/j.heliyon.2023.e17498
Preregistration
Open Data
Closed-loop neuromodulation and self-perception in clinical treatment of refractory epilepsy.
AJOB Neuroscience. 2023;14(1):32-44.
Open AccessPubMed Central PMC9007331
10.1080/21507740.2021.1958100
''Out of the clear blue sky she tells me she loves me'': Connection experiences between caregivers and people with dementia.
Journal of the American Geriatric Society. 2023; 71(7):2172-2183.
PubMed Central PMC1050003310.1111/jgs.18297
Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial.
Alzheimer’s & Dementia. 2023; 19(5):1865-1875.
PubMed Central PMC1015687310.1002/alz.12808
2022
Of care, cure and the in-between: COVID-19 treatment in a New York City intensive care unit
International Journal of Care and Caring. 2022; 6(1-2):67-84.
10.1332/239788221X16316503274460Use of telephone- and internet-based support to elicit and address financial abuse and mismanagement in dementia: Experiences from the Care Ecosystem study.
Journal of Alzheimer’s Disease. 2022; 86(1):219-229.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC10938943
10.3233/JAD-215284
Decisions with patients and families regarding aducanumab in Alzheimer disease, with recommendations for consent: AAN position statement.
Neurology. 2022; 98(4):154-159.
10.1212/WNL.0000000000013053Consent issues in the management of acute ischemic stroke: AAN position statement.
Neurology. 2022; 98(2):73-79.
10.1212/WNL.0000000000013040Wisdom and fluid intelligence are dissociable in healthy older adults.
International Psychogeriatrics. 2022; 34(3):229–239.
Open AccessPubMed Central PMC8578582
10.1017/S1041610221000521
Preregistration
Open Data
2021
Supported decision-making for people with dementia should focus on their values.
American Journal of Bioethics. 2021; 21(11):19–21.
Open Access10.1080/15265161.2021.1980150
Reduced utilitarian willingness to violate personal rights during the COVID-19 pandemic.
PLoS One. 2021; 16(10):e0259110.
Open AccessPubMed Central PMC8535394
10.1371/journal.pone.0259110
PsyArXiv preprint
Preregistration
Open Data
Open Materials
Goals of care conversations and subsequent advance care planning outcomes for people with dementia.
Journal of Alzheimer’s Disease. 2021; 83(4):1767–1773.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC9034733
10.3233/JAD-210720
Evidence for the ethics of incentivizing clinical trial enrollment?
JAMA Internal Medicine. 2021; 181(11):1488-1489.
10.1001/jamainternmed.2021.5449Guidelines for conducting ethical artificial intelligence research in neurology: A systematic approach for clinicians and researchers.
Neurology. 2021; 97(13):632–640
PubMed Central PMC848040710.1212/WNL.0000000000012570
Ethical considerations in dementia diagnosis and care: AAN position statement.
Neurology. 2021; 97(2):80-89.
10.1212/WNL.0000000000012079Choice and trade-offs: parent decision making for neurotechnologies for pediatric drug-resistant epilepsy.
Journal of Child Neurology. 2021; 36(11):943-949.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC8458226
10.1177/08830738211015010
New ethical and clinical challenges in “closed-loop” neuromodulation.
Neurology. 2021; 96(17):799-804.
PubMed Central PMC816642810.1212/WNL.0000000000011834
A qualitative analysis of ethical perspectives on recruitment and consent for human intracranial electrophysiology studies.
AJOB Neuroscience. 2021; 12(1):57-67.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC8168380
10.1080/21507740.2020.1866098
Caregiver “objective attitude” toward patients with neurodegenerative disease: Consequences for caregiver strain and relationship closeness.
Aging & Mental Health. 2021; 25(9):1709–1715.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC7748409
10.1080/13607863.2020.1771541
2020
Understanding advance directives as a component of advance care planning.
American Journal of Bioethics. 2020; 20(8):67-69.
pdf - author manuscript version10.1080/15265161.2020.1781974
Neurologists' duties in planning for triage of critical care resources in the COVID-19 pandemic.
Annals of Neurology. 2020; 88(3):431-432.
Open AccessPubMed Central PMC7405081
10.1002/ana.25852
Insiders and outsiders: Lessons for neuroethics from the history of bioethics.
AJOB Neuroscience. 2020; 11(3):155-166.
Open AccessPubMed Central PMC7485591
10.1080/21507740.2020.1778118
Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.
Alzheimer’s & Dementia. 2020; 6(1):e12010.
Open AccessPubMed Central PMC7201177
10.1002/trc2.12010
Amount and delay insensitivity during intertemporal choice in three neurodegenerative diseases reflects dorsomedial prefrontal atrophy.
Cortex. 2020; 124:54-65.
pdf - author manuscript version (peer-reviewed & edited)PubMed Central PMC7060812
10.1016/j.cortex.2019.10.009
Open Data
Open Materials
Book Review: Lynch, JA. The Origins of Bioethics: Remembering When Medicine Went Wrong. Michigan State University Press. 2019. 228pp. ISBN 9781611863413.
Sociology of Health & Illness. 2020; 42(4):962-963.
pdf - author manuscript version (peer-reviewed & edited)10.1111/1467-9566.13060
The Care Ecosystem: Promoting self-efficacy among dementia family caregivers.
Dementia. 2020; 19(6)1955-1973.
PubMed Central PMC654153310.1177/1471301218814121
2019
Commentary 1: Researcher integrity and contrasting obligations in interdisciplinary research.
Journal of Empirical Research on Human Research Ethics. 2019; 14(5):487-489.
PubMed Central PMC698036010.1177/1556264619853198a
Ethical challenges of risk, informed consent, and posttrial responsibilities in human research with neural devices: A review.
JAMA Neurology. 2019; 76(12):1506-1514.
PubMed Central PMC939515610.1001/jamaneurol.2019.3523
Effect of collaborative dementia care via telephone and internet on quality of life, caregiver well-being, and health care use: The Care Ecosystem randomized clinical trial.
JAMA Internal Medicine. 2019; 179(12):1658-1667.
Open AccessPubMed Central PMC6777227
10.1001/jamainternmed.2019.4101
COMT Val158Met polymorphism associated with greater susceptibility to framing effects in healthy older adults.
bioRxiv. 2019. [unrefereed preprint]
10.1101/790808bioRxiv preprint
Neurodegenerative disorders of the human frontal lobes.
Handbook of Clinical Neurology. 2019; 163:391-410.
10.1016/B978-0-12-804281-6.00021-5Variations in costs of a collaborative care model for dementia.
Journal of the American Geriatrics Society. 2019; 67(12):2628-2633.
PubMed Central PMC689873110.1111/jgs.16076
The role of care navigators working with people with dementia and their caregivers.
Journal of Alzheimer’s Disease. 2019; 71(1):45-55.
PubMed Central PMC700420910.3233/JAD-180957
Association between caregiver depression and emergency department use among patients with dementia.
JAMA Neurology. 2019; 76(10):1166-1173.
Open AccessPubMed Central PMC6618767
10.1001/jamaneurol.2019.1820
The costs of dementia subtypes to California Medicare fee-for-service, 2015.
Alzheimer’s & Dementia. 2019; 15(7): 899-906.
PubMed Central PMC718338610.1016/j.jalz.2019.03.015
Individual differences in level of wisdom are associated with brain activation during a moral decision‐making task.
Brain and Behavior. 2019; 9(6):e01302.
Open AccessPubMed Central PMC6577614
10.1002/brb3.1302
Dopamine receptor D4 (DRD4) polymorphisms with reduced functional potency intensify atrophy in syndrome-specific sites of frontotemporal dementia.
NeuroImage. Clinical. 2019; 23:101822.
Open AccessPubMed Central PMC6475809
10.1016/j.nicl.2019.101822
The NIH BRAIN initiative: Integrating neuroethics and neuroscience.
Neuron. 2019; 101(3):394-398.
Open Access10.1016/j.neuron.2019.01.024
2018
Neuroethics guiding principles for the NIH BRAIN initiative.
Journal of Neuroscience. 2018; 38(50):10586-10588.
Open AccessPubMed Central PMC6297371
10.1523/JNEUROSCI.2077-18.2018
Informed consent for the human research subject with a neurologic disorder.
Seminars in Neurology. 2018; 38(5):539-547.
pdf - published version10.1055/s-0038-1668077
Neurosurgical patients as human research subjects: Ethical considerations in intracranial electrophysiology research.
Neurosurgery. 2018; 83(1):29-37.
PubMed Central PMC577791110.1093/neuros/nyx361
Challenges in communicating and understanding predictive biomarker imaging for Alzheimer disease.
JAMA Neurology. 2018; 75(1):18-19.
10.1001/jamaneurol.2017.25582017
Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem.
PLoS Medicine. 2017; 14(3):e1002260.
Open AccessPubMed Central PMC5360211
10.1371/journal.pmed.1002260
Trends in recruitment rates for acute stroke trials, 1990-2014.
Stroke. 2017; 48(3):799-801.
Open AccessPubMed Central PMC5330837
10.1161/STROKEAHA.116.014458
2016
Failures to discuss and document preferences: Preventable medical errors in stroke care.
Neurology. 2016; 86(22):2032-3.
10.1212/WNL.0000000000002626Effect of waivers of consent on recruitment in acute stroke trials: A systematic review.
Neurology. 2016; 86(16):1543-51.
PubMed Central PMC483688710.1212/WNL.0000000000002587
Preregistration
Racial and ethnic differences in advance directive possession: Role of demographic factors, religious affiliation, and personal health values in a national survey of older adults.
Journal of Palliative Medicine. 2016; 19(2):149-56.
PubMed Central PMC475362510.1089/jpm.2015.0326
Open Data
Neuroeconomic dissociation of semantic dementia and behavioural variant frontotemporal dementia.
Brain. 2016; 139(2):578-87.
Open AccessPubMed Central PMC4861653
10.1093/brain/awv344
2014
Inability to consent does not diminish the desirability of stroke thrombolysis.
Annals of Neurology. 2014; 76(2):296-304.
PubMed Central PMC495755710.1002/ana.24209
Preregistration
Open Data
Open Materials
Financial errors in dementia: Testing a neuroeconomic conceptual framework.
Neurocase. 2014; 20(4):389-96.
PubMed Central PMC377074810.1080/13554794.2013.770886
Testing the presumption of consent to emergency treatment for acute ischemic stroke.
JAMA. 2014; 311(16):1689-91.
Open AccessPubMed Central PMC4126238
10.1001/jama.2014.3302
Preregistration
Open Data
Open Materials
2013
Dementia and personal identity: Implications for decision-making.
Handbook of Clinical Neurology. 2013; 118(1):409-18.
10.1016/B978-0-444-53501-6.00032-9The salience network causally influences default mode network activity during moral reasoning.
Brain. 2013; 1136(6):1929-41.
Open AccessPubMed Central PMC3673466
10.1093/brain/awt066
2011
The self: From philosophy to cognitive neuroscience.
Neurocase. 2011; 17(3):190-200.
pdf - author manuscript version (peer-reviewed & edited)10.1080/13554794.2010.532808
2010
Therapeutic misconceptions and moral conflict in clinical research.
Annals of Neurology. 2010; 67(4):419-21.
pdf - author manuscript version (peer-reviewed & edited)10.1002/ana.22003
2007
Justifying patient risks associated with medical education.
JAMA. 2007; 298(9):1046-8.
10.1001/jama.298.9.10462006
The real problem with equipoise.
American Journal of Bioethics. 2006; 6(4):37-47.
pdf - author manuscript version (peer-reviewed & edited)10.1080/15265160600755565
2005
Brain death without definitions.
Hastings Center Report. 2005; 35(6):20-30.
pdf - author manuscript version (peer-reviewed & edited)10.1353/hcr.2005.0105