Decision Lab at UCSF (Chiong lab)

Haeusermann T, Romero-Kornblum H, Dzeng E.
Of care, cure and the in-between: COVID-19 treatment in a New York City intensive care unit

International Journal of Care and Caring. 2022;6(1-2):67-84.

10.1332/239788221X16316503274460

Manivannan M, Heunis J, Hooper SM, Bernstein Sideman A, Lui KP, Possin KL, Chiong W.
Use of telephone- and internet-based support to elicit and address financial abuse and mismanagement in dementia: Experiences from the Care Ecosystem study.

Journal of Alzheimer’s Disease. 2022;86(1):219-229.

pdf - author manuscript version (peer-reviewed & edited)
10.3233/JAD-215284

Chiong W, Tolchin BD, Bonnie RJ, Busl K, Cruz-Flores S, Epstein LG, Greene EP, Illes J, Kirschen M, Larriviere DG, Mantri S, Rubin MA, Stern BJ, Taylor LP, Ethics, Law, and Humanities Committee (a joint committee of the AAN, ANA, and CNS)
Decisions with patients and families regarding aducanumab in Alzheimer disease, with recommendations for consent: AAN position statement.

Neurology. 2022;98(4):154-159.

10.1212/WNL.0000000000013053

Sattin JA, Chiong W, Bonnie RJ, Kirschen MP, Russell JA, on behalf of the Ethics, Law, and Humanities Committee, a joint committee of the American Academy of Neurology, American Neurological Association, and Child Neurology Society.
Consent issues in the management of acute ischemic stroke: AAN position statement.

Neurology. 2022;98(2):73-79.

https://doi.org/10.1212/WNL.0000000000013040

Jaworska A, Chiong W.
Supported decision-making for people with dementia should focus on their values.

American Journal of Bioethics. 2021;21(11):19–21.

Open Access
10.1080/15265161.2021.1980150

Antoniou R, Romero-Kornblum H, Young JC, You M, Kramer JH, Chiong W.
Reduced utilitarian willingness to violate personal rights during the COVID-19 pandemic.

PLoS ONE 16(10):e0259110.

Open Access
PubMed Central PMC8535394
https://doi.org/10.1371/journal.pone.0259110
PsyArXiv preprint
Preregistration
Open Data
Open Materials

publication image - photo by Mohamed Mahmoud Hassan on publicdomainpictures.net

Ma H, Kiekhofer RE, Hooper SM, Dulaney S, Possin KL, Chiong W.
Goals of care conversations and subsequent advance care planning outcomes for people with dementia.

Journal of Alzheimer’s Disease. 2021;83(4):1767–73.

pdf - author manuscript version (peer-reviewed & edited)
PubMed Central PMC9034733
10.3233/JAD-210720

publication image - Photo by Marek Studzinski on Unsplash

Ngo S, Kim AS, Chiong W.
Evidence for the ethics of incentivizing clinical trial enrollment?

JAMA Internal Medicine. 2021.

10.1001/jamainternmed.2021.5449

Haeusermann T, Lechner CR, Fong KC, Bernstein Sideman A, Jaworska A, Chiong W, Dohan D.
Closed-loop neuromodulation and self-perception in clinical treatment of refractory epilepsy.

AJOB Neuroscience. 2021; 1–13.

Open Access
10.1080/21507740.2021.1958100

Chiang S, Picard RW, Chiong W, Moss R, Worrell GA, Rao VR, Goldenholz DM.
Guidelines for conducting ethical artificial intelligence research in neurology: A systematic approach for clinicians and researchers.

Neurology. 2021;97(13):632–640

PubMed Central PMC8480407
10.1212/WNL.0000000000012570

Chiong W, Tsou AY, Simmons Z, Bonnie RJ, Russell JA, on behalf of the Ethics, Law, and Humanities Committee (a joint committee of the American Academy of Neurology, American Neurological Association, and Child Neurology Society)
Ethical considerations in dementia diagnosis and care: AAN position statement.

Neurology. 2021;97(2):80-89.

10.1212/WNL.0000000000012079

Hrincu V, McDonald PJ, Connolly MB, Harrison MJ, Ibrahim GM, Naftel RP, Chiong W, Alam A, Ribary U, Illes J.
Choice and trade-offs: parent decision making for neurotechnologies for pediatric drug-resistant epilepsy.

Journal of Child Neurology. 2021; 36(11):943-949.

pdf - author manuscript version (peer-reviewed & edited)
PubMed Central PMC8458226
10.1177/08830738211015010

Lindbergh CA, Romero-Kornblum H, Weiner-Light S, Young JC, Fonseca C, You M, Wolf A, Staffaroni AM, Daly R, Jeste DV, Kramer JH, Chiong W, the Hillblom Aging Network.
Wisdom and fluid intelligence are dissociable in healthy older adults.

International Psychogeriatrics. 2021;1–11.

Open Access
10.1017/S1041610221000521
Preregistration
Open Data

Hegde M, Chiong W, Rao VR.
New ethical and clinical challenges in “closed-loop” neuromodulation.

Neurology. 2021; 96(17):799-804.

PubMed Central PMC8166428
10.1212/WNL.0000000000011834

publication image - Photo by Thomasbg on Wikimedia Commons

Mergenthaler JV, Chiong W, Dohan D, Feler J, Lechner CR, Starr PA, Arias JJ.
A qualitative analysis of ethical perspectives on recruitment and consent for human intracranial electrophysiology studies.

AJOB Neuroscience. 2021; 12(1):57-67.

pdf - author manuscript version (peer-reviewed & edited)
PubMed Central PMC8168380
Content Sharing link
10.1080/21507740.2020.1866098

Zahir A, Staffaroni AM, Wickham RE, Quinn CM, Sapozhnikova A, Seidman J, Chiong W.
Caregiver “objective attitude” toward patients with neurodegenerative disease: Consequences for caregiver strain and relationship closeness.

Aging & Mental Health. 2021;25(9):1709–15.

pdf - author manuscript version (peer-reviewed & edited)
PubMed Central PMC7748409
10.1080/13607863.2020.1771541

Fong KC, Chiong W.
Understanding advance directives as a component of advance care planning.

American Journal of Bioethics. 2020; 20(8):67-69.

pdf - author manuscript version
10.1080/15265161.2020.1781974

publication image - Image from https://health.mil/News/Gallery/Photos/2020/05/18/Infection-Control-2020

Goss AL, Chiong W, Hemphill JC.
Neurologists' duties in planning for triage of critical care resources in the COVID-19 pandemic.

Annals of Neurology. 2020; 88(3):431-432.

Open Access
PubMed Central PMC7405081
10.1002/ana.25852

publication image - Photo by Shona Corsten on Unsplash

Chiong W.
Insiders and outsiders: Lessons for neuroethics from the history of bioethics.

AJOB Neuroscience. 2020; 11(3):155-166.

Open Access
PubMed Central PMC7485591
10.1080/21507740.2020.1778118

publication image - Image courtesy of Helen Medsger

Bernstein A, Merrilees J, Dulaney S, Harrison KL, Chiong W, Ong P, Heunis J, Choi J, Walker R, Feuer JE, Lee K, Dohan D, Bonasera SJ, Miller BL, Possin KL.
Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.

Alzheimer’s & Dementia. 2020; 6:e12010.

Open Access
PubMed Central PMC7201177
10.1002/trc2.12010

Beagle AJ, Zahir A, Borzello M, Kayser AS, Hsu M, Miller BL, Kramer JH, Chiong W.
Amount and delay insensitivity during intertemporal choice in three neurodegenerative diseases reflects dorsomedial prefrontal atrophy.

Cortex. 2020; 124:54-65.

pdf - author manuscript version (peer-reviewed & edited)
PubMed Central PMC7060812
10.1016/j.cortex.2019.10.009
Open Data
Open Materials

Haeusermann T, Fong KC, Lechner CR.
Book Review: Lynch, JA. The Origins of Bioethics: Remembering When Medicine Went Wrong. Michigan State University Press. 2019. 228pp. ISBN 9781611863413.

Sociology of Health & Illness. 2020; 42(4):962-963.

pdf - author manuscript version (peer-reviewed & edited)
10.1111/1467-9566.13060

Chiong W, Haeusermann T.
Commentary 1: Researcher integrity and contrasting obligations in interdisciplinary research.

Journal of Empirical Research on Human Research Ethics. 2019; 14(5):487-489.

PubMed Central PMC6980360
10.1177/1556264619853198a

Hendriks S, Grady C, Ramos KM, Chiong W, Fins JJ, Ford P, Goering S, Greely HT, Hutchison K, Kelly ML, Kim SYH, Klein E, Lisanby SH, Mayberg H, Maslen H, Miller FG, Rommelfanger K, Sheth SA, Wexler A.
Ethical challenges of risk, informed consent, and posttrial responsibilities in human research with neural devices: A review.

JAMA Neurology. 2019; 76(12):1506-1514.

10.1001/jamaneurol.2019.3523

Possin KL, Merrilees JJ, Dulaney S, Bonasera SJ, Chiong W, Lee KP, Hooper SM, Allen IE, Braley T, Bernstein A, Rosa TD, Harrison K, Begert-Hellings H, Kornak J, Kahn JG, Naasan G, Lanata S, Clark AM, Chodos A, Gearhart R, Ritchie C, Miller BL.
Effect of collaborative dementia care via telephone and internet on quality of life, caregiver well-being, and health care use: The Care Ecosystem randomized clinical trial.

JAMA Internal Medicine. 2019; 179(12):1658-1667.

Open Access
PubMed Central PMC6777227
10.1001/jamainternmed.2019.4101

Quinn CM, Borzello M, Zahir A, Kramer JH, Chiong W.
COMT Val158Met polymorphism associated with greater susceptibility to framing effects in healthy older adults.

bioRxiv. 2019. [unrefereed preprint]

10.1101/790808
bioRxiv preprint

publication image - Image courtesy of Salvatore Spina, MD PhD

Butler PM, Chiong W.
Neurodegenerative disorders of the human frontal lobes.

Handbook of Clinical Neurology. 2019;163:391-410.

10.1016/B978-0-12-804281-6.00021-5

Rosa TD, Possin KL, Bernstein A, Merrilees J, Dulaney S, Matuoka J, Lee KP, Chiong W, Bonasera SJ, Harrison KL, Kahn JG.
Variations in costs of a collaborative care model for dementia.

Journal of the American Geriatrics Society. 2019; 67(12):2628-2633.

PubMed Central PMC6898731
10.1111/jgs.16076

Bernstein A, Harrison KL, Dulaney S, Merrilees J, Bowhay A, Heunis J, Choi J, Feuer JE, Clark AM, Chiong W, Lee K, Braley TL, Bonasera SJ, Ritchie C, Dohan D, Miller BL, Possin KL.
The role of care navigators working with people with dementia and their caregivers.

Journal of Alzheimer’s Disease. 2019; 71(1):45-55.

PubMed Central PMC7004209
10.3233/JAD-180957

Guterman EL, Allen IE, Josephson SA, Merrilees JJ, Dulaney S, Chiong W, Lee K, Bonasera SJ, Miller BL, Possin KL.
Association between caregiver depression and emergency department use among patients with dementia.

JAMA Neurology. 2019; 76(10):1166-1173.

Open Access
PubMed Central PMC6618767
10.1001/jamaneurol.2019.1820

Chen Y, Wilson L, Kornak J, Dudley RA, Merrilees J, Bonasera SJ, Byrne CM, Lee K, Chiong W, Miller BL, Possin KL.
The costs of dementia subtypes to California Medicare fee-for-service, 2015.

Alzheimer’s & Dementia. 2019; 15(7): 899-906.

PubMed Central PMC7183386
10.1016/j.jalz.2019.03.015

Thomas ML, Martin AS, Eyler L, Lee EE, Macagno E, Devereaux M, Chiong W, Jeste DV.
Individual differences in level of wisdom are associated with brain activation during a moral decision‐making task.

Brain and Behavior. 2019; 9(6):e01302.

Open Access
PubMed Central PMC6577614
10.1002/brb3.1302

Butler PM, Chiong W, Perry DC, Miller ZA, Gennatas ED, Brown JA, Pasquini L, Karydas A, Dokuru D, Coppola G, Sturm VE, Boxer AL, Gorno-Tempini ML, Rosen HJ, Kramer JH, Miller BL, Seeley WW.
Dopamine receptor D4 (DRD4) polymorphisms with reduced functional potency intensify atrophy in syndrome-specific sites of frontotemporal dementia.

NeuroImage. Clinical. 2019; 23:101822.

Open Access
PubMed Central PMC6475809
10.1016/j.nicl.2019.101822

Ramos KM, Grady C, Greely HT, Chiong W, Eberwine J, Farahany NA, Johnson LS, Hyman SE, Rommelfanger KS, Serrano EE, Churchill JD, Gordon JA, Koroshetz WJ.
The NIH BRAIN initiative: Integrating neuroethics and neuroscience.

Neuron. 2019. 101(3):394-398.

Open Access
10.1016/j.neuron.2019.01.024

Greely HT, Grady C, Ramos KM, Chiong W, Eberwine J, Farahany NA, Johnson LS, Hyman BT, Hyman SE, Rommelfanger KS, Serrano EE.
Neuroethics guiding principles for the NIH BRAIN initiative.

Journal of Neuroscience. 2018. 38(50):10586-10588.

Open Access
PubMed Central PMC6297371
10.1523/JNEUROSCI.2077-18.2018

Merrilees JJ, Bernstein A, Dulaney S, Heunis J, Walker R, Rah E, Choi J, Gawlas K, Carroll S, Ong P, Feuer J, Braley T, Clark AM, Lee K, Chiong W, Bonasera SJ, Miller BL, Possin KL.
The Care Ecosystem: Promoting self-efficacy among dementia family caregivers.

Dementia. 2018.

PubMed Central PMC6541533
10.1177/1471301218814121

publication image - Photo by Marcelo Leal on Unsplash

Vaishnav NH, Chiong W.
Informed consent for the human research subject with a neurologic disorder.

Seminars in Neurology. 2018; 38(5):539-547.

pdf - published version
10.1055/s-0038-1668077

Chiong W, Leonard MK, Chang EF.
Neurosurgical patients as human research subjects: Ethical considerations in intracranial electrophysiology research.

Neurosurgery. 2018; 83(1):29-37.

PubMed Central PMC5777911
10.1093/neuros/nyx361

publication image - Image courtesy of Renaud La Joie, PhD.

Chiong W.
Challenges in communicating and understanding predictive biomarker imaging for Alzheimer disease.

JAMA Neurology. 2018; 75(1):18-19.

10.1001/jamaneurol.2017.2558

Possin KL, Merrilees J, Bonasera SJ, Bernstein A, Chiong W, Lee K, Wilson L, Hooper SM, Dulaney S, Braley T, Laohavanich S, Feuer JE, Clark AM, Schaffer MW, Schenk AK, Heunis J, Ong P, Cook KM, Bowhay AD, Gearhart R, Chodos A, Naasan G, Bindman AB, Dohan D, Ritchie C, Miller BL.
Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem.

PLoS Medicine. 2017; 14(3):e1002260.

Open Access
PubMed Central PMC5360211
10.1371/journal.pmed.1002260